Estate PlanningFinancial PlanningHealthRetirementAfter the Diagnosis: Making a Plan for Alzheimer’s

Retirement planning is all about planning today for the uncertainty of tomorrow.


This type of planning requires keeping an eye out for risks that could push the plan off course. Some of the most disruptive retirement risks are related to health care and long-term care risks. Specifically, the impact of dementia and Alzheimer’s.

Alzheimer’s is the most common type of dementia. It affects more than five million people, of all ages, in the United States. However, Alzheimer’s dementia mostly effects those later in retirement, with 80 percent being age 75 or older.1 Roughly two-thirds of those over age 65 with Alzheimer’s dementia are women. 2 Those who suffer from the disease develop memory, thinking, and behavior issues.3 As the disease progresses, the symptoms and challenges intensify. The Alzheimer’s Association explained:4

“As Alzheimer’s advances through the brain it leads to increasingly severe symptoms, including disorientation, mood and behavior changes; deepening confusion about events, time, and place; unfounded suspicions about family, friends, and professional caregivers; more serious memory loss and behavior changes; and difficulty speaking, swallowing, and walking.”

Coping with Alzheimer’s can be an extraordinary and often painful journey for patients, families, and caregivers. If you, or someone you love, has been diagnosed with the disease, act quickly to develop a plan of action that encompasses financial, legal, and end-of-life wishes.

Creating an Alzheimer’s action plan can help restore a sense of control after an unwelcome diagnosis and help protect loved ones from potential uncertainty and conflict in the future. A good place to begin is by learning more about the disease.

Empower yourself. As you experience the gamut of emotions that often accompany a diagnosis, try to be proactive. Educate yourself about dementia and Alzheimer’s. Join a support group. Keep a journal. Share information with loved ones. Understanding what may be ahead can help re-establish a sense of order and control.5

Begin building a care team. An Alzheimer’s team may include family members, close friends, neighbors, doctors, professional caregivers, members of community organizations, and others.

Building a team means talking with potential team members about what may be needed and when. In the early stages, people with Alzheimer’s may need assistance with:6

  • Keeping appointments
  • Managing money
  • Taking medications
  • Planning and organizing
  • Shopping and preparing meals
  • Exercising and relaxing

In later stages, they’ll need experienced and patient caregivers who have been well trained. If family members want to provide care, the AARP’s Dementia Friends Initiative can offer some insights about how to best interact with and support people who have dementia.7

If possible, decide on caregiving options while the individual with Alzheimer’s has the clarity to make sound decisions. The care choices you make should include a thorough evaluation of costs so you can make affordable choices.

In 2019, Genworth reported on the median annual costs for long-term care in the United States:8

Type of Long-term Care         Length of Stay                                                      Annual Cost

A Home Health Aid                 44 hours a week for 52 weeks                            $52,624

Adult Day Health Care            5 days a week for 52 weeks                                $19,500

Assisted Living Facility          12 months of care, private, one bedroom       $48,612

Nursing Home Care                365 days in a semi-private room                      $90,155

Nursing Home Care                365 days in a private room                                $102,200

Another option may be a dementia village. The first was established in the Netherlands. Villages rely on reminiscence therapy – using past activities and experiences to encourage positive memories and help people with dementia feel calmer.3

These village and specialty style care facilities continue to grow in popularity as awareness and research around the treatment dementia improves. Traditional care facilities can be confusing, based on layout and similar looks of all hallways and rooms. Slight changes to layouts and rooms can help patients navigate life better.

Review your financial plans. Once you have familiarized yourself with care options, take time to review your financial plans. Check in with your insurance provider to ascertain exactly what costs will be paid by insurance and what costs will be paid out of pocket.

Once you have a better understanding of potential costs, work with your financial representative to evaluate your budget and decide how to proceed. If your financial priorities and goals have changed, then your investment and allocation choices should reflect that.

Double-check legal documents. Make sure you’ve dotted the ‘i’s’ and crossed the ‘t’s’ when it comes to your estate plan. Make sure to review:

  • Your will. Make sure you have named the correct beneficiaries for your valuables and guardians for children and also have provisions in place for pets.9
  • Beneficiary designations. In many cases, the beneficiaries named on retirement plan accounts and insurance policies take precedence over heirs named in a will, so make sure the correct person or people are named.9
  • Your living will or advance directive. This legal document provides instructions that are implemented if you are unable to communicate or make decisions. An advance directive may include end-of-life wishes.10
  • Your Power of Attorney gives another person the right to act on your behalf if you become incapacitated.11
  • Your digital executor. Almost everyone now owns digital assets. This could be emails, digital currencies, or just online accounts at places like Amazon. Most state laws require special clauses in wills, trusts, and other legal documents to provide for the management of digital assets. Make sure all of your estate planning documents are up to date and that the documents name a digital executor to access, manage, delete, or archive digital files after your death.12
  • Any trusts. Depending on the complexity of your estate, you may have established a trust and a means for funding it after death.

Put critical financial documents in a safe place, and make sure at least one other trusted individual knows where they are.

Apply for Social Security Disability benefits. It has become easier for people who are younger than age 65 to qualify for benefits than it once was. Early-Onset Alzheimer’s Disease was added to the Social Security Administration’s Compassionate Allowances List.13

Alzheimer’s is the most expensive disease in America, according to CNBC.3 It’s critical to put a plan in place to help provide comfort and care for the person with Alzheimer’s and protect family and loved ones.



1 Alzheimer’s Association, 2020 Annual Report,

2 Alzheimer’s Association, 2020 Annual Report,









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This material was prepared by Carson Coaching. Carson Coaching is not affiliated with the named broker/dealer or firm.


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